Sometimes, I feel so alone

To date, I've never met another individual with Narcolepsy. My doctor recommended a local support group and gave me the information, but I was unable to locate this group online. My friends and family know that I have narcolepsy and they've come leaps and bounds in the way they think about me. No longer am I lazy J! Still, it would be nice to talk to someone else who "gets it".

The Narcolepsy Network has an annual conference and I was unable to attend last year when it was here in Vegas. This year it is in Cleveland and I'm leaning towards going. If you're reading this - have you ever met a person who has narcolepsy? Or if you're an N sufferer like me, have you met more like us?

In the past week there was a study that came out regarding how much people know about narcolepsy. The most surprising data to me is that only 20% of SLEEP SPECIALIST PHYSICIANS feel like they know a lot about Narcolepsy. 20%.... It's things like this that make me wonder how much different my life could be right now if I was diagnosed at 15 or 16 rather than 30.

Until next time,
J