Saturday, July 28, 2012

Sometimes, I feel so alone

To date, I've never met another individual with Narcolepsy. My doctor recommended a local support group and gave me the information, but I was unable to locate this group online. My friends and family know that I have narcolepsy and they've come leaps and bounds in the way they think about me. No longer am I lazy J! Still, it would be nice to talk to someone else who "gets it".

The Narcolepsy Network has an annual conference and I was unable to attend last year when it was here in Vegas. This year it is in Cleveland and I'm leaning towards going. If you're reading this - have you ever met a person who has narcolepsy? Or if you're an N sufferer like me, have you met more like us?

In the past week there was a study that came out regarding how much people know about narcolepsy. The most surprising data to me is that only 20% of SLEEP SPECIALIST PHYSICIANS feel like they know a lot about Narcolepsy. 20%.... It's things like this that make me wonder how much different my life could be right now if I was diagnosed at 15 or 16 rather than 30.

Until next time,
J

Friday, July 27, 2012

Steal my sunshine? I think not

Mad passengers, frazzled parents, rude lady? Don't let 'em steal your sunshine! Working in customer service, you deal with all types of people. Why is it that we seem to recall the unpleasant encounters more than the happy ones? Hopefully, the answer to that is because the happy people outnumber the mean ones.

Today at work, we laughed after an encounter with a person that was just unhappy. You can't win over everyone and I get that. What you can do (and what my team & I did) is treat that person just the same as everyone else. Maybe mean lady will look back on today and remember our happy, smiling faces. And maybe she'll even smile!

Until next time,
J